Human Genetics Commission

The Human Genetics Commission described itself as "the UK Government's advisory body on new developments in human genetics and how they impact on individual lives. We give the Government advice on human genetics with a particular focus on the social, ethical and legal issues."

The HGC was established in 1999 following a comprehensive review of the regulatory and advisory framework for biotechnology by the UK Government in May 1999.

The HGC was closed down following the UK government's review of Arm's Length Bodies.

In its Final Report of 2012, the chair, Prof Jonathan Montgomery, emphasised its success in influencing policy:

Since its creation in 1999, the Human Genetics Commission (HGC) has played an important role in helping UK Governments and the wider public grapple with the issues opened up by advances in our understanding of human genetics. Its work has led to policy and legislative changes, and the principles that have underpinned its reports have established a framework for responding to the possibilities that our enhanced scientific knowledge is creating.

People

From HGC website of 24 February 2010:

Chairs

• Professor Jonathan Montgomery - Chair
• Professor Sarah Cunningham-Burley - Vice-Chair

Members

• Professor Timothy Aitman - Professor of Clinical and Molecular Genetics at Imperial College London, and Head of the Physiological Genomics and Medicine Group at the MRC Clinical Sciences Centre.
• Professor Thomas Baldwin - Professor of Philosophy, University of York.
• Dr Paul Debenham - Director, Technology and Innovation, LGC
• Mrs Nicola Drury - Genetic Counsellor Nottingham Regional Clinical Genetics Service and Genetic Education Facilitator East Midlands Region for NHS National Genetics Education and Development Centre (NGEDC).
• Dr Frances Flinter - Consultant Clinical Geneticist and Caldicott Guardian, Genetics Department, Guy's and St Thomas' NHS Foundation Trust
• Mrs Ros Gardner
• Professor John Harris - Professor of Bioethics, School Of Law, University of Manchester
• Caroline Harrison - Barrister
• Professor Lisa Jardine (ex officio) - Chair, Human Fertilisation and Embryology Authority.
• Mr Alastair Kent - Director, Genetic Interest Group (GIG).
• Professor Anneke Lucassen - Professor of Clinical Genetics and Honorary Consultant Clinical Geneticist, University of Southampton Cancer Sciences division and Wessex Clinical Genetics Service.
• Dr Duncan McHale - Vice President, Translational Science, AstraZeneca, Chair of the European Industry (EFPIA) Pharmacogenetics group, member of the International Conference on Harmonization genomics group and member of the MRC Pharmaceuticals Forum.
• Dr Alice Maynard - Managing Director of Future Inclusion organisation.
• Dr Lola Oni OBE - Professional Services Manager Heamoglobinopathies, Brent Sickle Cell/Thalassaemia Centre

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